Find a Doctor Familiar with Mitochondrial Disease
Looking for a Mito doctor from the Mitochondrial Care Network?
You’ve come to the right place. UMDF maintains a list of 200+ doctors treating and researching mitochondrial disease. Contact our patient concierge for the complete list of doctors managing mitochondrial disease patients.
If you are a physician and would like to be added to this list, please contact us here.
- Lysosomal Storage Disorders
- Mitochondrial Disorders/Diseases
- Neurodegenerative Disorders
- Neurometabolic Disorders
Mitochondrial Care Network
The Mitochondrial Care Network (MCN) represents a group of physicians at medical centers across the country that have expertise and experience in providing coordinated care for patients with mitochondrial disease.
MCN is a collaborative effort between mitochondrial physicians in the Mitochondrial Medicine Society, MitoAction and UMDF.
Tips for Finding a Doctor
You found a doctor nearby, now what? Here are helpful tips and next steps.
Tip #1: Contact the physician’s office directly.
Ask if a doctor is currently accepting new patients and inquire about his or her experience level in diagnosing mitochondrial disease. Remember to check about insurance coverage too.
Tip #2: Go online, connect with other families.
Ask about their experiences with a specific doctor. Keep in mind each patient’s diagnosis, treatment and values may be different from yours.
UMDF Support Group: This Facebook Group consists of 10,000+ members networking with people around the world affected by mitochondrial disease. JOIN
Inspire Mito Energy Connection: A peer-to-peer online support and discussion community to gather and share information. JOIN
Tip #3: Contact our Support Team.
Ask to be connected with a UMDF Support Ambassador. We can help you outline what type of questions to ask about insurance, how to obtain a doctor referral or give tips on traveling to an out of state medical center.
Disclaimer: Any medical professionals included in the Find a Doctor list does not imply endorsement by UMDF.