Patients and families are our focus!
When a patient or parent first hears the phrase ‘I suspect mitochondrial disease’, UMDF is usually the next call they make or their first website visit.
In fact, on a yearly basis, UMDF answers and helps more than 4,000 people navigate their mitochondrial journey with phone support. Emails seeking support and resources are countless.
Bottom line – UMDF is ready to help.
UMDF supports newly diagnosed patients with critical information on treatment and care.
Our vast online viewing library provides countless topics on living with mitochondrial disease.
When a patient or family member calls or emails the UMDF, we try to answer questions quickly.
If there is a question we are unable to answer, we’ll help you get the information you need.
If your doctor needs information, we will point him or her to an expert in the mitochondrial medicine field for answers.
And of course, we are here to listen in difficult times.
UMDF connects patients to each other. UMDF Ambassadors across the nation provide patients and families with support in their state or region.
We also connect at UMDF Family Support Meetings and our National Symposium. This symposium is the only mitochondrial medicine meeting where patients, clinicians and scientists are able to network and interact.
We are building the ‘Roadmap to a Cure’ for the entire community— but we need the help of all patients, families, and cargivers to have an impact on treatments and cures.
How can UMDF help and support you today?
Connect now or call us at 888-317-UMDF (8633) today. Stay in touch with the latest information and newsletters.
We are here to serve the entire patient community now!