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So far Cliff Gorski has created 82 blog entries.

Ahead of Awareness Week, Scientists, Clinicians And Advocacy Groups Form Innovative Research Network for Leigh Syndrome

2019-09-11T15:29:51+00:00

(Pittsburgh, PA)  In an effort to move fast toward treatments and potential therapies, five of the world’s leading mitochondrial disease patient advocacy groups have joined together to form and fund an international Leigh Syndrome Research Network. Two U.S. based organizations, the United Mitochondrial Disease Foundation (UMDF) and People Against Leigh Syndrome (PALS), along with [...]

Ahead of Awareness Week, Scientists, Clinicians And Advocacy Groups Form Innovative Research Network for Leigh Syndrome2019-09-11T15:29:51+00:00

Minovia Announces Dosing of Patient in First Mitochondrial Cell Therapy Trial for the Treatment of Pearson Syndrome

2019-07-16T11:05:16+00:00

CAMBRIDGE, Mass. & HAIFA, Israel- Minovia Therapeutics today announced dosing of the first patient in a Phase I/II clinical trial of the company’s Mitochondrial Augmentation Therapy (MAT) for the treatment of Pearson syndrome. The first patient in the clinical trial for this pediatric mitochondrial disease was dosed at the Sheba Medical Center Hospital in Tel Aviv, [...]

Minovia Announces Dosing of Patient in First Mitochondrial Cell Therapy Trial for the Treatment of Pearson Syndrome2019-07-16T11:05:16+00:00

UMDF TO AWARD $350,000 FOR INNOVATIVE RESEARCH PROJECTS

2019-06-28T10:07:00+00:00

(Alexandria, VA) The United Mitochondrial Disease Foundation (UMDF) will award three new research grants totaling $350,000 to three projects that will impact the diagnosis, treatment and clinical care of mitochondrial disease patients.  The projects and their prize winners will be awarded at the UMDF’s Mitochondrial Medicine 2019 Symposium. Since 1996, the UMDF has funded [...]

UMDF TO AWARD $350,000 FOR INNOVATIVE RESEARCH PROJECTS2019-06-28T10:07:00+00:00

Stealth BioTherapeutics Completes Enrollment of Pivotal Study in Primary Mitochondrial Myopathy

2019-04-26T09:40:11+00:00

Top-line data expected by end of 2019 NEWS PROVIDED BY Stealth BioTherapeutics  Apr 25, 2019, 16:15 ET BOSTON, April 25, 2019 /PRNewswire/ -- Stealth BioTherapeutics (NASDAQ: MITO), a clinical-stage biotechnology company focused on the discovery, development and commercialization of novel therapies for diseases involving mitochondrial dysfunction, today announced completion of enrollment for MMPOWER-3 (SPIMM-301), with top-line data expected by year end. MMPOWER-3 is [...]

Stealth BioTherapeutics Completes Enrollment of Pivotal Study in Primary Mitochondrial Myopathy2019-04-26T09:40:11+00:00

An Existing Drug May Have Therapeutic Potential in Mitochondrial Disease

2019-02-26T15:56:55+00:00

An Existing Drug May Have Therapeutic Potential in Mitochondrial Disease --CHOP Researchers: Animal Studies May Offer Clues to Possible Precision Medicine Approach--   Philadelphia, Feb. 26, 2019 --New preclinical findings from extensive cell and animal studies suggest that a drug already used for a rare kidney disease could benefit patients with some mitochondrial disorders—complex [...]

An Existing Drug May Have Therapeutic Potential in Mitochondrial Disease2019-02-26T15:56:55+00:00

NIH Funds Interdisciplinary Team Pursuing Better Mitochondrial Disease Diagnosis

2019-02-15T11:16:59+00:00

An interdisciplinary research team has been awarded $395,112 to develop new tools to assess mitochondrial diseases, which are difficult to diagnose and treat, and can be fatal in children and adults. The National Institutes of Health have awarded researchers from the College of Engineering and the J. William Fulbright College of Arts and Sciences [...]

NIH Funds Interdisciplinary Team Pursuing Better Mitochondrial Disease Diagnosis2019-02-15T11:16:59+00:00

UMDF supports NORD in campaign for Rare Disease Day

2019-01-22T14:27:09+00:00

UMDF supports The National Organization for Rare Disorders (NORD)Ⓡ, in their new campaign for Rare Disease Day centering on three simple words: Show Your Stripes.  The campaign is a call to action for people to literally and figuratively “show their stripes” in support of rare diseases leading up to and on Rare Disease Day, [...]

UMDF supports NORD in campaign for Rare Disease Day2019-01-22T14:27:09+00:00

Johns Hopkins Medicine & Kennedy Krieger named certified Mitochondrial Medicine Center

2018-12-20T08:10:49+00:00

Baltimore, MD , December 19, 2018 -- The Johns Hopkins University School of Medicine and Kennedy Krieger Institute have jointly been named a certified Mitochondrial Medicine Center (MMC). Mitochondrial disease affects tiny structures within the cell, called mitochondria, that are often called the "powerhouses" of the cell. The disease is inherited, and it causes [...]

Johns Hopkins Medicine & Kennedy Krieger named certified Mitochondrial Medicine Center2018-12-20T08:10:49+00:00