Advocacy Update – March 2022
Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through...
Read moreOmnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through...
Read moreUnited Mitochondrial Disease Foundation 2022 Congressional Outlook As it reconvenes, Congress faces a packed agenda in a legislative year that...
Read moreLeigh Syndrome International Consortium Awards Second Round of Research Grants The Leigh Syndrome International Consortium, a patient-driven...
Read moreUMDF Elevates TK2d Patient Voices at FDA Pittsburgh, PA (January 31, 2021) – The United Mitochondrial Disease Foundation (UMDF) –...
Read moreUMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool Specific to Mitochondrial Disease Pittsburgh, PA (December 15, 2021)...
Read moreThere doesn’t seem to be a sport that Caitlin Baran hasn’t tried. The State College, PA, resident has competed in track and field, bocce, golf,...
Read moreThe “Voice of the Patient” Report The Externally-led Patient-Focused Drug Development meeting focusing on mitochondrial disease was...
Read moreADOA – Autosomal Dominant Optic Atrophy ADOA – Autosomal Dominant Optic Atrophy –...
Read more“I can’t even tell you how often we were in the hospital in those early years,” said Nikki about her son Gavin, who was diagnosed with...
Read moreLike many parents, Aneesa’s introduction to mitochondrial disease was jarring. After months of jumping from specialist to specialist who ran...
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