LHON & Charles Bonnet Syndrome Connect

Many people who are affected with LHON vision also experience Charles Bonnet Syndrome (CBS), the experience of phantom images or hallucinations which co-exist with one's regular visual experience. They can be simple or complex, static or moving, color or black and white. CBS is under diagnosed, and can cause mental stress for those living with […]

Event Series LHON – Midwest Connect

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

UMDF Mitochondrial Medicine 2023 in Charlotte, NC

Sheraton & Le Meridien Charlotte Hotel Complex 555 South McDowell Street, Charlotte, NC, United States

Join us in Charlotte, North Carolina, as we bring together the best minds in mitochondrial medicine and the patients we serve.