ENERGIZE THE FIGHT.

Our Mito Champions

Need to Connect with Us?

Call the Support Line: (888) 900-6486



Find a Doctor

FIND A MITO DOC →

UMDF maintains a list of 200+ doctors treating and researching mitochondrial disease.



Ways to Give

WE CAN’T DO IT ALONE →

Your involvement is critical to find a cure for mitochondrial disease.



Find an Event

VIEW UMDF EVENTS →

Find a virtual support meeting or UMDF fundraiser in your hometown.



Take Action

BE AN ADVOCATE →

Use your voice to impact legislation affecting the mitochondrial community at the federal and state level.



Find Support

UMDF IS HERE TO HELP →

Get helpful resources, educational info and caring support.



Our Impact

READ IMPACT REPORT →

The work done through UMDF is making a global impact.

UMDF Connect

UMDF Statement on the FDA’s Elamipretide Decision

Mito Advocacy, Press Room

May 29, 2025 -- Earlier today, the U.S. Food and Drug Administration (FDA) decided against approval of elamipretide for use in patients impacted by the rare mitochondrial disease Barth syndrome. UMDF President and CEO Kristen Clifford issued the following statement:...

UMDF Cosigns Letter to HHS Urging Preservation of Federal Newborn Screening System

Mito Advocacy, Press Room

Ask the Mito Doc – May 2025; Q&A

Ask the Mito Doc

Ask the Mito Doc - May 2025 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Ask the Mito Doc - May 2025: Mitochondrial Disease and Biorepositories - Why...